Overview

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Est.

2009

Latest Fiscal Year

Not available

Organization Type

Grantmaker

AI Summary

The Dravet Syndrome Foundation Inc is a 501(c)(3) grantmaking organization that focuses on funding initiatives related to Dravet syndrome. In 2024, the foundation distributed a total of $2 million across 16 grantees, emphasizing a relationship-based approach to engagement, as it does not accept unsolicited proposals and grants are made by invitation only. Nonprofits interested in connecting with the foundation can explore warm-introduction pathways through Impala's Funder Prospecting.

Mission Statement

The mission of the Dravet Syndrome Foundation is to aggressively raise funds for Dravet syndrome & related epilepsies; support & fund research; increase awareness; & provide support to affected individuals & families.
Total Funding Given
$2M
2024
Grantees funded
16
Multi-year grantees
31%
Funding by Year
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Total No. of Grants
7
Median 1st year grant
$150K
Median 2nd year grant
$150K
Top 3 Grants
Matched grants only
Grantee
Grant Size
M
Mary Anne Meskis
Board Member
J
Josh Goldman
Board Member
N
Nathan Batt
Board Member

Frequently Asked Questions

Can I submit an unsolicited grant proposal to DRAVET SYNDROME FOUNDATION INC?
No. DRAVET SYNDROME FOUNDATION INC does not accept unsolicited proposals. Funding is by invitation only.
Where does DRAVET SYNDROME FOUNDATION INC give?
DRAVET SYNDROME FOUNDATION INC primarily gives to organizations located in Pennsylvania, Michigan, and Ohio. These states represent the largest share of the foundation’s grantmaking by dollars awarded. Additional geographic details are available to registered users.
What size are DRAVET SYNDROME FOUNDATION INC’s grants?
The largest share of grants from DRAVET SYNDROME FOUNDATION INC fall in the $50 thousand to $100 thousand range. The median first-year grant is about $150 thousand. More detailed grant size data is available to registered users.
How many grants does DRAVET SYNDROME FOUNDATION INC make each year?
In 2024, DRAVET SYNDROME FOUNDATION INC awarded about 7 grants, totaling nearly $2 million. More detailed grant metrics are available to registered users.
Who did DRAVET SYNDROME FOUNDATION INC fund recently?
In 2024, DRAVET SYNDROME FOUNDATION INC awarded grants to about 20 grantees. Recent grantees include THE CHILDREN'S HOSPITAL OF PHILADELPHIA, UNIVERSITY OF MICHIGAN, and Northwestern University. More detailed information on all recent recipients is available to registered users.
How do we apply to DRAVET SYNDROME FOUNDATION INC?
DRAVET SYNDROME FOUNDATION INC does not accept unsolicited proposals. Funding is by invitation only.