DRAVET SYNDROME FOUNDATION INC

AI Summary
The Dravet Syndrome Foundation Inc is a 501(c)(3) grantmaking organization that focuses on funding initiatives related to Dravet syndrome. In 2024, the foundation distributed a total of $2 million across 16 grantees, emphasizing a relationship-based approach to engagement, as it does not accept unsolicited proposals and grants are made by invitation only. Nonprofits interested in connecting with the foundation can explore warm-introduction pathways through Impala's Funder Prospecting.
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Mission Statement
The mission of the Dravet Syndrome Foundation is to aggressively raise funds for Dravet syndrome & related epilepsies; support & fund research; increase awareness; & provide support to affected individuals & families.
Cause Areas
2
Communication media
Foundations
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Grantee
Total Funding
Funding Share
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
PHILADELPHIA, PA
$1.1M
27%
UNIVERSITY OF MICHIGAN
Dearborn, MI
$625K
15%

Northwestern University
Evanston, IL
$315K
7%
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Total No. of Grants
7
Median 1st year grant
$150K
Median 2nd year grant
$150K
Top 3 Grants
Matched grants only
Grantee
Grant Size
Frequently Asked Questions
Can I submit an unsolicited grant proposal to DRAVET SYNDROME FOUNDATION INC?
No. DRAVET SYNDROME FOUNDATION INC does not accept unsolicited proposals. Funding is by invitation only.
Where does DRAVET SYNDROME FOUNDATION INC give?
DRAVET SYNDROME FOUNDATION INC primarily gives to organizations located in Pennsylvania, Michigan, and Ohio. These states represent the largest share of the foundation’s grantmaking by dollars awarded. Additional geographic details are available to registered users.
What size are DRAVET SYNDROME FOUNDATION INC’s grants?
The largest share of grants from DRAVET SYNDROME FOUNDATION INC fall in the $50 thousand to $100 thousand range. The median first-year grant is about $150 thousand. More detailed grant size data is available to registered users.
How many grants does DRAVET SYNDROME FOUNDATION INC make each year?
In 2024, DRAVET SYNDROME FOUNDATION INC awarded about 7 grants, totaling nearly $2 million. More detailed grant metrics are available to registered users.
Who did DRAVET SYNDROME FOUNDATION INC fund recently?
In 2024, DRAVET SYNDROME FOUNDATION INC awarded grants to about 20 grantees. Recent grantees include THE CHILDREN'S HOSPITAL OF PHILADELPHIA, UNIVERSITY OF MICHIGAN, and Northwestern University. More detailed information on all recent recipients is available to registered users.
How do we apply to DRAVET SYNDROME FOUNDATION INC?
DRAVET SYNDROME FOUNDATION INC does not accept unsolicited proposals. Funding is by invitation only.
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