The Ehlers-Danlos Society
The Ehlers-Danlos Society
NEW YORK, NY, US
•
501(c)(3)
•
EIN
38-2813140
•
•
Women Led
BIPOC Led
LGBTQ+ Led
The Ehlers-Danlos Society
NEW YORK, NY, US
•
501(c)(3)
•
EIN
38-2813140
•
•
Women Led
BIPOC Led
LGBTQ+ Led
AI Summary
The Ehlers-Danlos Society is a nonprofit focused on advancing research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), with a mission to improve therapies and the lives of affected individuals across health care, genetics, neurology, pediatrics, and related fields. Based on the information provided, it reported $9.6M in total revenue and a $2.5M operating budget for filing year 2025; its largest listed funder is the MIKE & SOFIA SEGAL FOUNDATION, which contributed $2.8M.
Mission Statement
The Ehlers-Danlos Society is dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.
Cause Areas
20
Diseases and conditions
Health care quality
Health care access
Biomedicine
Cardiology
Diagnostic imaging
Genetics
Geriatrics
Internal medicine
Neurology
Orthopedics
Pediatrics
Stem cell therapy
Surgery
Medical support services
Public health
Reproductive health care
Human services
Philanthropy
Technology
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Explore this org's ecosystem
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Populations
0
This organization has not submitted any populations.
Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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- 47 funders
- 54 board & team members
- 12 historic 990s & financials
- 6-year operating budget trend
Frequently Asked Questions
What is The Ehlers-Danlos Society’s budget?
In 2024, The Ehlers-Danlos Society reported an annual operating budget of around $3.3 million. More detailed financial information is available to registered users.
What causes does The Ehlers-Danlos Society support?
The Ehlers-Danlos Society supports work in Diseases and conditions, Health care quality, Health care access, Biomedicine, Cardiology, Diagnostic imaging, Genetics, Geriatrics, Internal medicine, Neurology, Orthopedics, Pediatrics, Stem cell therapy, Surgery, Medical support services, Public health, Reproductive health care, Human services, Philanthropy, and Technology.
Where does The Ehlers-Danlos Society operate?
The Ehlers-Danlos Society is headquartered in NEW YORK, NY.
Who funded The Ehlers-Danlos Society recently?
In 2025, The Ehlers-Danlos Society received grants from AMERICAN ONLINE GIVING FOUNDATION INC, ABRAMSON FAMILY FOUNDATION INC, and STRIVE FUND. More information on this organization’s funders is available to registered users.
What is the largest grant The Ehlers-Danlos Society received in 2024?
The largest grant to The Ehlers-Danlos Society in 2024 exceeds $2.4 million.