THE MARFAN FOUNDATION INC

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The Marfan Foundation Inc is a nonprofit organization dedicated to driving research, education, and support for individuals living with Marfan syndrome, Loeys-Dietz syndrome, vascular Ehlers-Danlos syndrome, and related genetic aortic and vascular conditions. With an operating budget of $6 million and total revenue of $7.8 million, the Foundation focuses on fostering an informed public and providing dedicated support to families, caregivers, and healthcare providers. The organization does not rely on any single funder for 50% or more of its revenue and can be accessed online at www.marfan.org.
Mission Statement
SEE SCHEDULE O.THE MARFAN FOUNDATION DRIVES RESEARCH, EDUCATION AND SUPPORT AND BUILDS COMMUNITY TO IMPROVE OUTCOMES, SAVE LIVES AND EMPOWER ALL PEOPLE TO THRIVE WHO ARE LIVING WITH MARFAN, LOEYS-DIETZ, VASCULAR EHLERS-DANLOS SYNDROMES, AND RELATED GENETIC AORTIC AND VASCULAR CONDITIONS. *WE PURSUE THE MOST INNOVATIVE RESEARCH AND MAKE SURE THAT IT RECEIVES PROPER FUNDING. *WE FOSTER AN INFORMED PUBLIC AND EDUCATED PATIENT COMMUNITY TO INCREASE EARLY DIAGNOSIS AND ENSURE LIFE-SAVING TREATMENT. *WE PROVIDE DEDICATED SUPPORT TO FAMILIES, CAREGIVERS, AND HEALTHCARE PROVIDERS.
Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Frequently Asked Questions
What is THE MARFAN FOUNDATION INC’s budget?
In 2025, THE MARFAN FOUNDATION INC reported an annual operating budget of around $6 million. More detailed financial information is available to registered users.
Where does THE MARFAN FOUNDATION INC operate?
THE MARFAN FOUNDATION INC is headquartered in Port Washington, NY.
Who funded THE MARFAN FOUNDATION INC recently?
In 2025, THE MARFAN FOUNDATION INC received grants from AMERICAN ONLINE GIVING FOUNDATION INC, CHARITIES AID FOUNDATION AMERICA, and FLAHERTY FAMILY FOUNDATION. More information on this organization’s funders is available to registered users.
What is the largest grant THE MARFAN FOUNDATION INC received in 2024?
The largest grant to THE MARFAN FOUNDATION INC in 2024 exceeds $975 thousand.
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