Overview

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Est.

1981

Latest Fiscal Year

Not available

Organization Type

Grantseeker

AI Summary

The Marfan Foundation Inc is a nonprofit organization dedicated to driving research, education, and support for individuals living with Marfan syndrome, Loeys-Dietz syndrome, vascular Ehlers-Danlos syndrome, and related genetic aortic and vascular conditions. With an operating budget of $6 million and total revenue of $7.8 million for the year 2025, the foundation focuses on improving health outcomes, fostering early diagnosis, and providing dedicated support to families and healthcare providers. The organization does not rely on a single funder for 50% or more of its revenue and can be accessed online at www.marfan.org.

Mission Statement

SEE SCHEDULE O.THE MARFAN FOUNDATION DRIVES RESEARCH, EDUCATION AND SUPPORT AND BUILDS COMMUNITY TO IMPROVE OUTCOMES, SAVE LIVES AND EMPOWER ALL PEOPLE TO THRIVE WHO ARE LIVING WITH MARFAN, LOEYS-DIETZ, VASCULAR EHLERS-DANLOS SYNDROMES, AND RELATED GENETIC AORTIC AND VASCULAR CONDITIONS. *WE PURSUE THE MOST INNOVATIVE RESEARCH AND MAKE SURE THAT IT RECEIVES PROPER FUNDING. *WE FOSTER AN INFORMED PUBLIC AND EDUCATED PATIENT COMMUNITY TO INCREASE EARLY DIAGNOSIS AND ENSURE LIFE-SAVING TREATMENT. *WE PROVIDE DEDICATED SUPPORT TO FAMILIES, CAREGIVERS, AND HEALTHCARE PROVIDERS.
Revenues
$7.8M
Expenses
$7.6M
Net Income:
+$214.7K
Assets
$19.5M
Liabilities
$2.7M
Net Assets:
+$16.9M
Operating Budget
$6M
Operating Budget by Year

Due Diligence

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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Total No. of Grants
65
Median grant size
$5K
Largest grant received
$975K
A
Alan Braverman Md
Board Member
J
Jeffrey C Lesage
Board Member
S
Sinclair Li
Board Member

Frequently Asked Questions

What is THE MARFAN FOUNDATION INC’s budget?
In 2025, THE MARFAN FOUNDATION INC reported an annual operating budget of around $6 million. More detailed financial information is available to registered users.
Where does THE MARFAN FOUNDATION INC operate?
THE MARFAN FOUNDATION INC is headquartered in Port Washington, NY.
Who funded THE MARFAN FOUNDATION INC recently?
In 2025, THE MARFAN FOUNDATION INC received grants from Jewish Communal Fund, THE SHOLTON FOUNDATION C/O MARY SHOLTON-WITTE, and AMERICAN ONLINE GIVING FOUNDATION INC. More information on this organization’s funders is available to registered users.
What is the largest grant THE MARFAN FOUNDATION INC received in 2024?
The largest grant to THE MARFAN FOUNDATION INC in 2024 exceeds $975 thousand.