THE MARFAN FOUNDATION INC
AI Summary
THE MARFAN FOUNDATION INC is a national nonprofit focused on research, education, support, and community-building for people living with Marfan, Loeys-Dietz, vascular Ehlers-Danlos syndromes, and related genetic aortic and vascular conditions. With a 2025 operating budget of $6M and total revenue of $7.8M, it has a moderate-sized philanthropic footprint and has received support from funders including THE BLOOMBERG FAMILY FOUNDATION INC ($975K, 2022), THE SHAW FAMILY ENDOWMENT FUND ($800K, 2019), and CENTENE FOUNDATION ($392.5K, 2023).
Mission Statement
SEE SCHEDULE O.THE MARFAN FOUNDATION DRIVES RESEARCH, EDUCATION AND SUPPORT AND BUILDS COMMUNITY TO IMPROVE OUTCOMES, SAVE LIVES AND EMPOWER ALL PEOPLE TO THRIVE WHO ARE LIVING WITH MARFAN, LOEYS-DIETZ, VASCULAR EHLERS-DANLOS SYNDROMES, AND RELATED GENETIC AORTIC AND VASCULAR CONDITIONS. *WE PURSUE THE MOST INNOVATIVE RESEARCH AND MAKE SURE THAT IT RECEIVES PROPER FUNDING. *WE FOSTER AN INFORMED PUBLIC AND EDUCATED PATIENT COMMUNITY TO INCREASE EARLY DIAGNOSIS AND ENSURE LIFE-SAVING TREATMENT. *WE PROVIDE DEDICATED SUPPORT TO FAMILIES, CAREGIVERS, AND HEALTHCARE PROVIDERS.
Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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- 184 funders
- 65 board & team members
- 12 historic 990s & financials
- 6-year operating budget trend
Frequently Asked Questions
What is THE MARFAN FOUNDATION INC’s budget?
In 2025, THE MARFAN FOUNDATION INC reported an annual operating budget of around $6 million. More detailed financial information is available to registered users.
Where does THE MARFAN FOUNDATION INC operate?
THE MARFAN FOUNDATION INC is headquartered in Port Washington, NY.
Who funded THE MARFAN FOUNDATION INC recently?
In 2025, THE MARFAN FOUNDATION INC received grants from Jewish Communal Fund, THE SHOLTON FOUNDATION C/O MARY SHOLTON-WITTE, and AMERICAN ONLINE GIVING FOUNDATION INC. More information on this organization’s funders is available to registered users.
What is the largest grant THE MARFAN FOUNDATION INC received in 2024?
The largest grant to THE MARFAN FOUNDATION INC in 2024 exceeds $975 thousand.