SUPPORT OF THE CARE PROGRAM, WHICH GRANTS FUNDS TO APPROXIMATELY 250 INDIVIDUALS, TO SUBSIDIZE, OR TO PURCHASE IN FULL, A HEALTH INSURANCE POLICY (PRIMARY, SECONDARY OR BOTH), TO WHICH THE PATIENT IS ENTITLED OR ELIGIBLE, BUT FOR WHICH THE PATIENT DOES NOT HAVE ADEQUATE PERSONAL RESOURCES TO ENROLL.
Geographies
Not indicated
Dates
Jan 1, 2024 – Dec 31, 2024
Source
990
No causes provided
No populations provided
–
$0
Education and Awareness Initiatives
EDUCATION AND AWARENESS INITIATIVES THROUGHOUT THE U.S. THE PROGRAM INCLUDES A WEBSITE WITH EXPANSIVE CONTENT THAT IS REGULARLY UPDATED, MONTHLY BLOG POSTS ON GAUCHER DISEASE FROM MEDICAL THOUGHT LEADERS, MONTHLY E-NEWSLETTERS, HUMAN INTEREST STORIES IN FILM, DIGITAL AND WRITTEN MATERIALS,AN ANNUAL EDUCATIONAL SYMPOSIUM FOR PATIENTS AND PHYSICIANS, A CARRIER SCREENING PROGRAM AS WELL AS SERVICES TO PATIENTS (WITH INFORMATION, SUPPORT,AND RESOURCES) TO HELP THEM ACHIEVE AND MAINTAIN THEIR OPTIMAL HEALTH.
