FSHD SOCIETY

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The FSHD Society is a 501(c)(3) grantmaking organization that focuses its funding primarily in Kansas, Connecticut, and Ohio. It operates on a relationship-based, invitation-only model and does not accept unsolicited proposals. Nonprofits interested in engaging with the organization can explore warm-introduction pathways through Impala's Funder Prospecting.
Mission Statement
FIND TREATMENTS AND A CURE FOR FSHD WHILE EMPOWERING OUR FAMILIES
Cause Areas
3
Mathematics
Nursing care
Health
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Explore this org's ecosystem
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Grantee
Total Funding
Funding Share
University of Kansas Medical Center Research Institute
$1.2M
17%
RESEARCH INSTITUTE AT NATIONWIDE CHILDRENS HOSPITAL
$699.4K
10%
CHILDREN'S RESEARCH INSTITUTE
$632.5K
9%
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Total No. of Grants
4
Median 1st year grant
$71.6K
Median 2nd year grant
$82.6K
Top 3 Grants
Matched grants only
Grantee
Grant Size
Frequently Asked Questions
Can I submit an unsolicited grant proposal to FSHD SOCIETY?
No. FSHD SOCIETY does not accept unsolicited proposals. Funding is by invitation only.
Where does FSHD SOCIETY give?
FSHD SOCIETY primarily gives to organizations located in Kansas, Connecticut, and Ohio. These states represent the largest share of the foundation’s grantmaking by dollars awarded. Additional geographic details are available to registered users.
What size are FSHD SOCIETY’s grants?
The largest share of grants from FSHD SOCIETY fall in the above $10 million range. The median first-year grant is about $72 thousand. More detailed grant size data is available to registered users.
How many grants does FSHD SOCIETY make each year?
In 2022, FSHD SOCIETY awarded about 4 grants, totaling nearly $414 thousand. More detailed grant metrics are available to registered users.
Who did FSHD SOCIETY fund recently?
In 2024, FSHD SOCIETY awarded grants to about 20 grantees. Recent grantees include University of Kansas Medical Center Research Institute, RESEARCH INSTITUTE AT NATIONWIDE CHILDRENS HOSPITAL, and CHILDREN'S RESEARCH INSTITUTE. More detailed information on all recent recipients is available to registered users.
How do we apply to FSHD SOCIETY?
FSHD SOCIETY does not accept unsolicited proposals. Funding is by invitation only.
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