Programs
APFED Awareness and Education Initiatives
EDUCATION, AWARENESS, ADVOCACY, AND SUPPORT:APFED HOSTED ITS ANNUAL PATIENT CONFERENCE HYBRID ONLINE AND IN SAN DIEGO. LAUNCHED A NEW WEBSITE IN PARTNERSHIP WITH THE ALLERGY & ASTHMA NETWORK TO EDUCATE PATIENTS AND CAREGIVERS ABOUT BIOLOGIC MEDICINES. WE CELEBRATATED NATIONAL EOSINOPHIL AWARENESS WEEK BY CREATING A NATIONAL AWARENESS CAMPAIGN AND LEADING EFFORTS TO INITIATE SPECIAL LIGHTING OF 30 LANDMARKS AROUND THE U.S. TO RAISE AWARENESS. WE ANNOUNCED AND CELEBRATED THE INAUGURAL WORLD EOSINOPHILIC DISEASES DAY WITH PATIENT ADVOCACY GROUPS AROUND THE GLOBE. APFED WAS INVITED TO SPEAK TO THE ITALIAN SENATE ABOUT THE IMPORTANT WORK CARRIED OUT BY PATIENT ADVOCACY GROUPS. APFED PRODUCED 10 NEW PODCAST EPISODES AND 12 WEBINARS TO EDUCATE PATIENTS AND CAREGIVERS ABOUT EOSINOPHIL-ASSOCIATED DISEASE. AWARDED THREE $1,000 COLLEGE SCHOLARSHIPS IN PARTNERSHIP. PUBLISHED MONTHLY EDUCATIONAL E-NEWS, QUARTERLY NEWSLETTER AND SOCIAL MEDIA CONTENT. APFED CONTRIBUTED TO A A MEDICAL EDUCATION PROGRAM ABOUT EOE AND PARTNERED ON A MEDICAL EDUCATION PROGRAM FOR HES. APFED SERVED AS EXPERT FACULTY IN A SERIES OF ROUNDTABLES AND LIVE WEBCASTS FOR MANAGED CARE AND PAYER PROFESSIONALS TO DISCUSS THE CLINICAL AND ECONOMIC BURDEN OF EOE, TREATMENTS, AND THE IMPORTANCE OF EARLY DIAGNOSIS AND MULTIDISCIPLINARY CARE.APFED CO-AUTHORED A VOICE OF THE PATIENT REPORT ABOUT ASTHMA INCLUDINGEOSINOPHILIC ASTHMA, FEATURING OUTCOMES FROM THE LITTLE AIRWAYS, BIG VOICES MEETING THAT WE CO-HOSTED IN 2021. APFED COLLABORATED WITH INTERNATIONAL PATIENT ADVOCATES AND MEDICAL EXPERTS TO DEVELOP AND PUBLISH PATIENT CHARTER FOR EOSINOPHIL DISEASE TO HELP HIGHLIGHT UNMET NEEDS TO ADDRESS. ADVOCATED FOR NEEDS OF PATIENTS AND NEED FOR ACCESS TO THERAPIES. APFED COMMUNICATED UNMET NEEDS IN THERAPEUTICS FOR EOE.GeographiesNot indicatedDatesJan 1, 2022 – Dec 31, 2022Source990No causes providedNo populations provided–$331.6KResearch Grant Program
RESEARCH: AWARDED TWO $100,000 (EACH) 2-YEAR RESEARCH GRANTS THROUGH OUR HOPE ON THE HORIZON RESEARCH GRANT PROGRAM.ATTENDED AAAAIS ANNUAL SCIENTIFIC MEETING TO DISSEMINATE RESOURCES TO HEALTH CARE PROVIDERS, AWARDED TWO ABSTRACT AWARDS, AND WERE INVITED SPEAKERS AT A SPECIAL SYMPOSIUM FOR EGID. ATTENDED ANNUAL PROFESSIONAL MEETINGS OF ATS AND ACAAI TO DISCUSS PATIENT UNMET NEEDS WITH ATTENDEES AND DISSEMINATE RESOURCES. TWO APFED RESEARCH COLLABORATIONS WERE PRESENTED AT DIGESTIVE DISEASE WEEK. COLLABORATED ON PATIENT EXPERIENCE RESEARCH FOR EGPA, HES, AND EOSINOPHILIC ASTHMA AND PRESENTED FINDINGS AT THE EACCI AND ACAAI. APFED INFORMED PATIENTS OF RESEACHOPPORTUNITIES,COLLABORATED WITH CEGIR, MAINTAINED PARTNERSHIP FOR THE EOSINOPHIL.CONNECT PATIENT INSIGHTS NETWORK, CONTINUED ON STEERING COMMITTEE FOR THE EGID PARTNERS REGISTRY, AND JOINED AS A MEMBER OF RDCRN CPAG STEERING COMMITTEE IN 2022.GeographiesNot indicatedDatesJan 1, 2022 – Dec 31, 2022Source990No causes providedNo populations provided–$212.2K
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