STXBP1 FOUNDATION

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The STXBP1 Foundation is a 501(c)3 organization that focuses its grantmaking efforts primarily in Colorado, Pennsylvania, and New York, having disbursed a total of $829K across 10 grantees in 2024. This funder operates on a relationship-based model and does not accept unsolicited proposals; grants are made by invitation only. Nonprofits interested in engaging with the foundation can explore warm-introduction pathways through Impala's Funder Prospecting.
Mission Statement
TO CREATE AWARENESS IN THE DISORDERS ASSOCIATED WITH STXBP1 MUTATIONS. FUND AND DRIVE RESEARCH DISCOVERY OF A CURE. PROVIDE FAMILIES WITH TOOLS TO HELP THEM UNDERSTAND THE DISEASE & HOW TO GET INVOLVED. ADVOCATE TO IMPROVE EARLY DETECTION. FOSTER ACTIVISM TO HELP CHANGE POLICIES IN FAVOR OF ORPHANED DISEASES. IMPROVE THE LIVES OF OUR STXBP1 FAMILIES.
Cause Areas
1
Genetic conditions and birth defects
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Grantee
Total Funding
Funding Share
Children's Hospital Colorado Health System
$544.3K
32%
NEW YORK WEILL CORNELL MEDICAL CENTER FUND INC
$266.3K
16%

TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
$250.9K
15%
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Total No. of Grants
9
Median 1st year grant
$40.2K
Median 2nd year grant
$47.5K
Top 3 Grants
Matched grants only
Grantee
Grant Size
Frequently Asked Questions
Can I submit an unsolicited grant proposal to STXBP1 FOUNDATION?
No. STXBP1 FOUNDATION does not accept unsolicited proposals. Funding is by invitation only.
Where does STXBP1 FOUNDATION give?
STXBP1 FOUNDATION primarily gives to organizations located in Colorado, Pennsylvania, and New York. These states represent the largest share of the foundation’s grantmaking by dollars awarded. Additional geographic details are available to registered users.
What size are STXBP1 FOUNDATION’s grants?
The largest share of grants from STXBP1 FOUNDATION fall in the $50 thousand to $100 thousand range. The median first-year grant is about $40 thousand. More detailed grant size data is available to registered users.
How many grants does STXBP1 FOUNDATION make each year?
In 2024, STXBP1 FOUNDATION awarded about 9 grants, totaling nearly $829 thousand. More detailed grant metrics are available to registered users.
Who did STXBP1 FOUNDATION fund recently?
In 2024, STXBP1 FOUNDATION awarded grants to about 10 grantees. Recent grantees include Children's Hospital Colorado Health System, NEW YORK WEILL CORNELL MEDICAL CENTER FUND INC, and TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA. More detailed information on all recent recipients is available to registered users.
How do we apply to STXBP1 FOUNDATION?
STXBP1 FOUNDATION does not accept unsolicited proposals. Funding is by invitation only.
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