FOUNDATION FOR CHILDREN WITH NEUROIMMUNE DISORDERS INC
Programs
Physician Education and Support Program
PHYSICIAN EDUCATION, SUPPORT AND AWARENESS: FUNDED A FELLOWSHIP AT UNIV. OF CALIFORNIA, SAN FRANCISCO. ALSO PROVIDED DETAILED GUIDES TO SUPPORT PHYSICIANS AS WELL AS FREE CONTINUING MEDICAL EDUCATION, AND FREE ACCESS TO EXPERT CONSULTATION PANEL THAT REACHED OVER 9,000 PHYSICIANS IN THE UNITED STATES AND ABROAD, EDUCATING THEM ON NEUROIMMUNE DISORDERS INCLUDING PANS AND PANDAS. EXPENSES INCLUDED ACCREDITATION, MARKETING, PLATFORM FEES, HONORARIUM, PRINTING, AND A ROBUST EMAIL OUTREACH, MAILING OUTREACH, WARM OUTREACH AND IN PERSON OUTREACH PROGRAMS. ALSO ORGANIZED THE PUBLICATION OF SPECIAL ISSUE IN A PEER-REVIEWED MEDICAL JOURNAL AND PAID FOR OPEN ACCESS FOR PHYSICIANS WORLDWIDE ON PANS. EDUCATED 6,000 PLUS CLINICIANS IN 70 PLUS COUNTRIES AROUND THE WORLD WITH ACCREDITED CME - 90% OF THEM COMPLETELY FREE OF CHARGE IN AN EFFORT TO IMPROVE PATIENT OUTCOMES. SUSTAINED OUTREACH TO 150 PLUS RESIDENCY PROGRAMS IN THE U.S. WITH FREE ACCREDITED CONTINUING MEDICAL EDUCATION.GeographiesNot indicatedDatesJan 1, 2023 – Dec 31, 2023Source990No causes providedNo populations provided–$536.2KFamily Support Programs
FAMILY SUPPORT PROGRAMS INCLUDED RUNNING A PRIVATE GROUP FOR 6,000 PATIENTS AND FAMILIES, PROVIDING MODERATION AND SUPPORT IN THAT GROUP, RESPONDING TO EMAILS TO ASSIST WITH FINDING PHYSICIANS, PROVIDING EDUCATIONAL WEBINARS WITH THERAPISTS AND PHYSICIANS. COSTS INCLUDED PLATFORM FEES, HONORARIUM, MATERIALS. OFFERED FREE SUPPORT AND HIGH QUALITY EDUCATION TO 30,000 PLUS PATIENTS AND FAMILIES.GeographiesNot indicatedDatesJan 1, 2023 – Dec 31, 2023Source990No causes providedNo populations provided–$30.1KResearch Fellowship Program
FUNDED A RESEARCH FELLOWSHIP AT UNIV. OF CALIFORNIA SAN FRANCISCO FOR ONE FULL YEAR FOR $137,423 INCLUDING SALARY AND FRINGE BENEFITS AND A RESEARCH GRANT TO STANFORD UNIVERSITY OF $10,000 FOR STUDYING A PLAQUE MICROBIOME FOR USE IN PANS.GeographiesNot indicatedDatesJan 1, 2023 – Dec 31, 2023Source990No causes providedNo populations provided–$147.4K
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