Finding Hope for FRRS1L is a nonprofit organization dedicated to supporting children and families affected by the FRRS1L gene disorder through community building, awareness initiatives, and funding gene therapy research. With an operating budget of $201.2K and total revenue of $1.3M for the filing year 2025, the organization is focused on fostering connections among affected families and increasing understanding of FRRS1L among medical professionals and the public. The organization does not rely on a single funder for 50% or more of its revenue, ensuring a diversified funding base to support its mission. For more information, visit their website at www.frrs1l.org.