Finding Hope for FRRS1L
AI Summary
Finding Hope for FRRS1L is a health-focused nonprofit dedicated to building community support for children and families affected by FRRS1L gene disorder, advancing gene therapy research toward a potential cure, and increasing awareness among the public and medical community. In filing year 2025, it reported $1.3M in total revenue and a $201.2K operating budget, with major support from RARE VILLAGE FOUNDATION and HENSON AND KIRKLAND CHARITABLE FOUNDATION.
Mission Statement
FIND a Community : Create a community of Hope for FRRS1L gene disorder children and families to connect communicate collaborate and support one another. HOPE for a Cure: Serve to fund the research and development of gene therapy replacement treatment that has been proven in research to bring FRRS1L mouse back to function. FRRS1L awareness: Share information and resources with the public medical professionals and researchers to increase the awareness and understanding of FRRS1L.
Cause Areas
2
Nursing care
Health
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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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- 6 funders
- 8 board & team members
- 2 historic 990s & financials
- 6-year operating budget trend
Frequently Asked Questions
What is Finding Hope for FRRS1L’s budget?
In 2025, Finding Hope for FRRS1L reported an annual operating budget of around $201 thousand. More detailed financial information is available to registered users.
What causes does Finding Hope for FRRS1L support?
Finding Hope for FRRS1L supports work in Nursing care and Health.
Where does Finding Hope for FRRS1L operate?
Finding Hope for FRRS1L is headquartered in Fort Collins, CO.
Who funded Finding Hope for FRRS1L recently?
In 2025, Finding Hope for FRRS1L received grants from AMERICAN ONLINE GIVING FOUNDATION INC, THE US CHARITABLE GIFT TRUST, and PAYPAL CHARITABLE GIVING FUND. More information on this organization’s funders is available to registered users.
What is the largest grant Finding Hope for FRRS1L received in 2024?
The largest grant to Finding Hope for FRRS1L in 2024 exceeds $25 thousand.