Overview

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Est.

1996

Fiscal Year Start

Jan 1

Organization Type

Grantseeker

AI Summary

The Siegel Rare Neuroimmune Association (EIN: 91-1780467) is dedicated to supporting and advocating for individuals and families affected by rare neuroimmune disorders of the central nervous system. With an operating budget of $1.4 million and total revenue of $1.5 million for the filing year 2024, the organization focuses on promoting awareness, empowering patients and clinicians through education, and advancing research to improve the quality of life for those impacted by these conditions. The association does not rely on a single funder for 50% or more of its revenue, ensuring a diverse funding base to support its mission. For more information, visit their website at www.wearesrna.org.

Mission Statement

TO SUPPORT AND ADVOCATE FOR INDIVIDUALS AND THEIR FAMILIES DIAGNOSED WITH RARE NEUROIMMUNE DISORDERS OF THE CENTRAL NERVOUS SYSTEM; TO PROMOTE AWARENESS AND TO EMPOWER PATIENTS, FAMILIES, CLINICIANS AND SCIENTISTS THROUGH EDUCATION PROGRAMS AND PUBLICATIONS AND TO ADVANCE THE SCIENTIFIC UNDERSTANDING OF AND THERAPY DEVELOPMENT FOR THESE RARE DISORDERS BY SUPPORTING THE TRAINING OF CLINICIANS-SCIENTISTS DEDICATED TO THESE RARE DISORDERS AND BY SUPPORTING BASIC AND CLINICAL RESEARCH. OUR GOAL IS TO IMPROVE THE QUALITY OF LIFE OF INDIVIDUALS WITH RARE NEUROIMMUNE DISORDERS.
Revenues
$1.5M
Expenses
$1.6M
Net Income:
-$121.3K
Assets
$1.6M
Liabilities
$164.1K
Net Assets:
+$1.5M
Operating Budget
$1.4M
Operating Budget by Year

Due Diligence

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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Total No. of Grants
5
Median grant size
$9.7K
Largest grant received
$36.6K
C
Chitra Krishnan
Board Member
J
James T Lubin
Board Member
C
Carlos a Pardo-Villamizar MD
Board Member

Frequently Asked Questions

What is SIEGEL RARE NEUROIMMUNE ASSOCIATION’s budget?
In 2024, SIEGEL RARE NEUROIMMUNE ASSOCIATION reported an annual operating budget of around $1.4 million. More detailed financial information is available to registered users.
What causes does SIEGEL RARE NEUROIMMUNE ASSOCIATION support?
SIEGEL RARE NEUROIMMUNE ASSOCIATION supports work in Education, Diseases and conditions, and Health.
Where does SIEGEL RARE NEUROIMMUNE ASSOCIATION operate?
SIEGEL RARE NEUROIMMUNE ASSOCIATION is headquartered in Powell, OH.
Who funded SIEGEL RARE NEUROIMMUNE ASSOCIATION recently?
In 2024, SIEGEL RARE NEUROIMMUNE ASSOCIATION received grants from FIDELITY INVESTMENTS CHARITABLE GIFT FUND, ROLES FAMILY FOUNDATION, and PAYPAL CHARITABLE GIVING FUND. More information on this organization’s funders is available to registered users.
What is the largest grant SIEGEL RARE NEUROIMMUNE ASSOCIATION received in 2024?
The largest grant to SIEGEL RARE NEUROIMMUNE ASSOCIATION in 2024 exceeds $37 thousand.