Overview

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Est.

1975

Latest Fiscal Year

Not available

Organization Type

Grantseeker

AI Summary

NATIONAL TUBEROUS SCLEROSIS ASSOCIATION is a nonprofit focused on diseases and conditions, with a mission to improve quality of life for everyone affected by tuberous sclerosis complex by catalyzing new treatments, driving research toward a cure, and expanding access to lifelong support. In filing year 2025, it reported an operating budget of $8.1M and total revenue of $9.8M, with major support from TSC ALLIANCE ENDOWMENT FUND INC, The Ramesh and Kalpana Bhatia Family Foundation, OPL Charities, FIDELITY INVESTMENTS CHARITABLE GIFT FUND, and COMMUNITY FOUNDATION OF NORTHERN COLORADO.

Mission Statement

FINDING A CURE FOR TUBEROUS SCLEROSIS COMPLEX WHILE IMPROVING THE LIVES OF THOSE AFFECTED.
Revenues
$10M
Expenses
$8.7M
Net Income:
+$1.3M
Assets
$17.3M
Liabilities
$1.9M
Net Assets:
+$15.4M
Operating Budget
$7.9M
Operating Budget by Year

Due Diligence

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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Total No. of Grants
20
Median grant size
$29.9K
Largest grant received
$239K
K
Kari Luther Rosbeck
Board Member
B
Brittany Smith
Board Member
L
Lesley Holmes
Board Member
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  • 74 funders
  • 94 board & team members
  • 12 historic 990s & financials
  • 6-year operating budget trend
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Frequently Asked Questions

What is NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC’s budget?
In 2024, NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC reported an annual operating budget of around $7.9 million. More detailed financial information is available to registered users.
What causes does NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC support?
NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC supports work in Diseases and conditions.
Where does NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC operate?
NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC is headquartered in Silver Spring, MD.
Who funded NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC recently?
In 2025, NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC received grants from AMERICAN ONLINE GIVING FOUNDATION INC, GREATER WASHINGTON COMMUNITY FOUNDATION, and RAYMOND JAMES CHARITABLE ENDOWMENT FUND. More information on this organization’s funders is available to registered users.
What is the largest grant NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC received in 2024?
The largest grant to NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC in 2024 exceeds $239 thousand.