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THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION

THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION

King Of Prussia, PA, US
501(c)3
EIN
41-2073220
Regional Funder
funder logo

THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION

King Of Prussia, PA, US
501(c)3
EIN
41-2073220
Regional Funder

Overview

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Est.

2002

Fiscal Year Start

Jul 1

Organization Type

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Grantmaker
AI Summary
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The Association for Frontotemporal Degeneration is a 501(c)3 organization that focuses on funding initiatives related to frontotemporal degeneration, primarily in New York, Pennsylvania, and California. This funder does not accept unsolicited proposals and operates on a relationship-based, invitation-only engagement model. Nonprofits interested in connecting with this organization can explore warm-introduction pathways via Impala's Funder Prospecting.

Mission Statement

PROMOTE AND FUND RESEARCH INTO DEVELOPING BETTER DIAGNOSTIC PROCESSES, THERAPIES, AND CURES FOR FRONTOTEMPORAL DEGENERATION (FTD); PROVIDE INFORMATION, EDUCATION, SUPPORT AND ADVOCACY TO PERSONS DIAGNOSED WITH FTD, THEIR FAMILIES AND CAREGIVERS; EDUCATE PHYSICIANS AND OTHER HEALTH PROFESSIONALS ABOUT FTD AND HOW TO IMPROVE PATIENT CARE; BRING ABOUT GREATER PUBLIC AWARENESS OF THE NATURE AND PREVALENCE OF FRONTOTEMPORAL DEGENERATION AND THE NEEDS OF THOSE WHO ARE COPING WITH IT; ADVOCATE WITH PUBLIC OFFICIALS TO PROMOTE PUBLIC AND PRIVATE PROGRAMS THAT PROVIDE APPROPRIATE, AFFORDABLE AND HIGH-QUALITY, LONG-TERM HEALTH CARE AND SOCIAL SERVICES.
Total Funding Given

$1.5M

2025
Grantees funded
35
Multi-year grantees
34%
Funding by Year
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Total No. of Grants

6

Median 1st year grant
$110K
Median 2nd year grant
$100K
Top 3 Grants
Matched grants only
Grantee
Grant Size
H
Halima Amjad
Board Member
K
Kathy Mele
Board Member
K
Kristin Schneeman
Board Member

Frequently Asked Questions

Can I submit an unsolicited grant proposal to THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION?
No. THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION does not accept unsolicited proposals. Funding is by invitation only.
Where does THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION give?
THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION primarily gives to organizations located in New York, Pennsylvania, and California. These states represent the largest share of the foundation’s grantmaking by dollars awarded. Additional geographic details are available to registered users.
What size are THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION’s grants?
The largest share of grants from THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION fall in the $100 thousand to $250 thousand range. The median first-year grant is about $110 thousand. More detailed grant size data is available to registered users.
How many grants does THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION make each year?
In 2025, THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION awarded about 6 grants, totaling nearly $1.5 million. More detailed grant metrics are available to registered users.
Who did THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION fund recently?
In 2025, THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION awarded grants to about 40 grantees. Recent grantees include ALZHEIMER'S DRUG DISCOVERY FOUNDATION, TARGET ALS FOUNDATION INC, and THE FTD DISORDERS REGISTRY LLC. More detailed information on all recent recipients is available to registered users.
How do we apply to THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION?
THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION does not accept unsolicited proposals. Funding is by invitation only.
Overview
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