THE FTD DISORDERS REGISTRY LLC
AI Summary
THE FTD DISORDERS REGISTRY LLC is a nonprofit focused on Alzheimer’s disease and other forms of dementia, with a mission to provide a patient registry for individuals affected by frontotemporal degeneration (FTD), a devastating neurodegenerative disease. In filing year 2025, it reported an operating budget of $892.5K and total revenue of $871.2K; its listed funders include RAINWATER CHARITABLE FOUNDATION, THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION, and MAYO CLINIC.
Mission Statement
PROVIDE A PATIENT REGISTRY FOR THOSE AFFLICTED BY FTD, A DEVASTATING NEURODEGENERATIVE DISEASE.
Cause Areas
1
Alzheimer's disease and other forms of dementia
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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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- 5 funders
- 19 board & team members
- 10 historic 990s & financials
- 6-year operating budget trend
Frequently Asked Questions
What is THE FTD DISORDERS REGISTRY LLC’s budget?
In 2025, THE FTD DISORDERS REGISTRY LLC reported an annual operating budget of around $893 thousand. More detailed financial information is available to registered users.
What causes does THE FTD DISORDERS REGISTRY LLC support?
THE FTD DISORDERS REGISTRY LLC supports work in Alzheimer's disease and other forms of dementia.
Where does THE FTD DISORDERS REGISTRY LLC operate?
THE FTD DISORDERS REGISTRY LLC is headquartered in King Of Prussia, PA.
Who funded THE FTD DISORDERS REGISTRY LLC recently?
In 2025, THE FTD DISORDERS REGISTRY LLC received grants from THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION, THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION, and MAYO CLINIC. More information on this organization’s funders is available to registered users.
What is the largest grant THE FTD DISORDERS REGISTRY LLC received in 2024?
The largest grant to THE FTD DISORDERS REGISTRY LLC in 2024 exceeds $250 thousand.
What is THE FTD DISORDERS REGISTRY LLC’s reliance on government grants?
THE FTD DISORDERS REGISTRY LLC relied on government grants for more than 25% of their total revenue in 2025.